On May 14 and 15, 2024, the BBC is organizing a symposium that will officially inaugurate the creation of an Altruistic Data Association.
This creation is the result of the application of the European Data Governance Act (DGA), which encourages the voluntary sharing of data for altruistic purposes such as scientific research or the improvement of public services. This symposium will present the fruit of our interactions with the political world, scientific experts and the trust placed in the BBC by its 25 patient associations and 22 scientific societies.
For who ?
This symposium is aimed at a wide audience interested in data sharing in the healthcare sector. There are 150 places available. The political debates and the session where patient associations have their say will be translated into French and Dutch in real time. The scientific session will be in English. Online participants will be able to ask questions via the Slido platform. Reservations will be open from March 15, 2024.
The program includes the active participation of politicians, scientists, patient associations, members of the European Commission, the Belgian Health Data Agency and the Brain Councils of 5 other member states who have decided to join forces. It will be a hybrid event, meaning it can be taken online or in person.
At the University Foundation, located at Egmont street 11, 1000 Brussels
The organization of this symposium would not be possible without the help of our valued partners. We have obtained financial support from FNRS, FWO, Visit Brussels and 8 pharmaceutical companies (Eisai, Pfizer, Janssen - Johnson & Johnson, Lundbeck, Lilly, UCB, Teva and Ipsen)".
14th of May 2024
Collen-Francqui assistant professor heading the Computational Neurology group at University of Antwerp and consultant Neurologist at UZA (Memory Clinic).
“Implementing computer-aided diagnostic models for neuroimages in a clinical setting – promise and pitfalls”
Associate chair of neurology in the UZ Brussel
“Artificial intelligence from bench to bedside in neurology, neurosurgery and psychiatry”“Artificial intelligence from bench to bedside in neurology, neurosurgery and psychiatry”
Docent Patent law at K.U Leuven
“The application of data altruism in clinical research through empirical and legal analysis lenses”
Professor of paediatric neuromuscular diseases University of Oxford
Professor of paediatric neurology- University of Liège
“The use of digital outcome measures in clinical trials in rare neurological diseases”
15th of May 2024
Paediatric neurologist at Inkendaal Rehabilitation Hospital & Professor of neuroscience and developmental psychology at the faculty of Psychological Sciences and Education at ULB, and visiting professor at the VUB and KU Leuven
“Research methologies to improve the life of people with brain disorders”
Technical Officer at World Health Organisation || Health Data Scientist || Epidemiologist ||
“Assessing the landscape of Artificial Intelligence in Mental Health Research”
Legal Researcher in digital law, e-mental health, neurotech, emotion recognition
“To lag behind, or to leap frog that is the question : will the EU catch up to regulatory front runners in e-mental health?”
Member of the Executive and Management Board at European Union Joint Programme for Neurodegenerative Diseases & President of the Croatian Brain Council, which is a member of the Brain Data Hub
“Taking care of data: from a bench to a bedside and back”